Remembering A Rare And Wonderful Person On Rare Disease Day.

Julie (Benson) Flynn died of Von Hippel-Lindau syndrome nearly one year ago, but not before her bravery and beauty inspired thousands of people. Watch this video of her inspirational speech on Rare Disease Day 2015 at the State House then listen to the podcast below. Learn more about Von Hippel-Lindau syndrome from the VHL Alliance.

The Jim Polito Show

The Jim Polito Show

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